SMA awareness and support

Looking for additional information and support? Below you'll find a number of organizations dedicated to educating and helping individuals living with spinal muscular atrophy (SMA).

Cure SMA provides a nationwide support system to the spinal muscular atrophy community. For those newly diagnosed, they offer a number of resources, including care packages, information packets, and a family support staff. Cure SMA funds a comprehensive research program focused on developing treatments for all types and ages of SMA. They host the largest annual SMA conference in the world for families and members of the scientific community.

Created in 1991, the mission of FightSMA is to strategically accelerate the search for a treatment and cure for spinal muscular atrophy by raising disease awareness and funding research.

The SMA Foundation has invested millions in the development of critical, validated research tools and other drug discovery resources. It was established in 2003 by Loren Eng and Dinakar Singh, parents of a child with spinal muscular atrophy.

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