SPINRAZA STORIES/ADULTS ON SPINRAZA
Real-world SPINRAZA stories
Stephen // AGE 39 // Father
TREATED WITH SPINRAZA FOR 4+ YEARS
Experienced a treatment change for 12 months and returned to SPINRAZA
“Having SMA, I set the example by doing things that could be perceived as difficult. Yeah, I still have SMA, but I don't let SMA stop me.”
YARIANNA // AGE 30 // ARTIST
TREATED WITH SPINRAZA FOR 5+ YEARS
Experienced a treatment change for 6 months and returned to SPINRAZA
“I’ve always had a desire to express myself.”
RYAN // AGE 21 // DISABILITIES ADVOCATE
TREATED WITH SPINRAZA FOR 6+ YEARS
Experienced a treatment change for 2 weeks and returned to SPINRAZA
"Making the most of my years at college."
LAUREN // AGE 20 // SIGHTSEER
TREATED WITH SPINRAZA FOR 6+ YEARS
“More than anything, I just wanted to maintain my strength.”
IAN // AGE 36 // MUSICIAN
TREATED WITH SPINRAZA FOR 5+ YEARS
“Now I feel like I am being proactive and doing something that may help me.”
JONNA // AGE 36 // NATURE LOVER
TREATED WITH SPINRAZA FOR 5+ YEARS
“I’m a wife, mother, nature lover.”
ROBB // AGE 37 // HISTORY TEACHER
TREATED WITH SPINRAZA FOR 6+ YEARS
“Spending time with my granddaughter has been amazing.”
NICOLE // AGE 45 // GRAPHIC DESIGNER
TREATED WITH SPINRAZA FOR 5+ YEARS
Experienced a treatment change for 3 months and returned to SPINRAZA
“I’m so thankful every day that I get to do what I do.”
STEPHEN // AGE 39 // FATHER
STEPHEN // AGE 39 // FATHER
“Having SMA, I set the example by doing things that could be perceived as difficult. Yeah, I still have SMA, but I don't let SMA stop me.”
YARIANNA // AGE 30 // ARTIST
YARIANNA // AGE 30 // ARTIST
“I’ve always had a desire to express myself.”
RYAN // AGE 21 // DISABILITIES ADVOCATE
RYAN // AGE 21 // DISABILITIES ADVOCATE
"Making the most of my years at college."
LAUREN // AGE 20 // SIGHTSEER
LAUREN // AGE 20 // SIGHTSEER
“More than anything, I just wanted to maintain my strength.”
IAN // AGE 36 // <br>MUSICIAN
IAN // AGE 36 //
MUSICIAN
MUSICIAN
“Now I feel like I am being proactive and doing something that may help me.”
JONNA // AGE 36 // NATURE LOVER
JONNA // AGE 36 // NATURE LOVER
“I’m a wife, mother, nature lover.”
ROBB // AGE 37 // <br>HISTORY TEACHER
ROBB // AGE 37 //
HISTORY TEACHER
HISTORY TEACHER
“Spending time with my granddaughter has been amazing.”
NICOLE // AGE 45 // GRAPHIC DESIGNER
NICOLE // AGE 45 // GRAPHIC DESIGNER
“I’m so thankful every day that I get to do what I do.”
*Based on commercial patients, early access patients, and clinical trial participants through May 2022.
†SPINRAZA pivotal studies included patients from 3 days to 16 years of age at first dose, but
did not include sufficient numbers of subjects aged 65 and older to determine whether they
respond differently from younger patients.