.

SPINRAZA STORIES/CHILDREN ON SPINRAZA

These are moments and stories.
These are personal victories.
This is SPINRAZA.

have been treated
with SPINRAZA
worldwide*

have been treated
with SPINRAZA
worldwide*

there’s someone from almost every age group who has taken SPINRAZA

*Based on commercial patients, early access patients, and clinical trial participants through December 2020.

†Includes clinical trial patients.

‡Clinical studies of SPINRAZA included patients from 3 days to 16 years of age at first dose, but did not include sufficient numbers of subjects aged 65 and over to determine whether they respond differently from younger patients.

§Based on commercial patients in the US (including Puerto Rico) through December 2020.

Hear from SPINRAZA families.

Watch some real-life stories of children and learn about their personal victories.

Sofia // age 2 // early-onset SMA

“She has got so much joy and so much love and so much drive.”

Ruby // age 4 // later-onset SMA

“We feel like we have this tool to fight back with.”

ASHLEY // age 7 // later-onset SMA

“The little gains mean so much.”

Carlee // age 11 // later-onset SMA

“This is hope for her future.”

Camden // age 4 // presymptomatic SMA

“We’re just so thankful where he's at right now.”

Find more information about SMA.

ABOUT SMA
EXPLORE SUPPORT

IMPORTANT SAFETY INFORMATION

Increased risk of bleeding complications has been observed after administration of similar medicines. Your healthcare provider should perform blood tests before you start treatment with SPINRAZA and before each dose to monitor for signs of these risks. Seek medical attention if unexpected bleeding occurs.

Increased risk of kidney damage, including potentially fatal acute inflammation of the kidney, has been observed after administration of similar medicines. Your healthcare provider should perform urine testing before you start treatment with SPINRAZA and before each dose to monitor for signs of this risk.

The most common side effects of SPINRAZA include lower respiratory infection, fever, constipation, headache, vomiting, back pain, and post-lumbar puncture syndrome.

These are not all of the possible side effects of SPINRAZA. Call your healthcare provider for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.

Before taking SPINRAZA, tell your healthcare provider if you are pregnant or plan to become pregnant.

Please see full Prescribing Information.

This information is not intended to replace discussions with your healthcare provider.

INDICATION

SPINRAZA® (nusinersen) is a prescription medicine used to treat spinal muscular atrophy (SMA) in pediatric and adult patients.

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Why SPINRAZA
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TAKING SPINRAZA
Getting Started Dosing Find a Treatment Center
SPINRAZA STORIES
Adults on SPINRAZA Children on SPINRAZA
WHAT IS SMA
About SMA
Support & Events
Support and Resources Insurance Support SMA360°™ Events FAQs

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