Individual results may vary based on several factors, including severity of disease, initiation of treatment, and duration of therapy.
*Based on commercial patients in the US (including Puerto Rico) through December 2019.
“Around the age of 32, I had moved across the country and started working with a new doctor. I was feeling weaker but learning to accept it. My new doctor mentioned a new treatment to me called SPINRAZA.
“I had never heard of this treatment; to my knowledge, there was no treatment for SMA at that time. I tempered my expectations about what the drug could do for me from the very beginning because I’m a pragmatic dude. I wasn’t going to get excited about something that could potentially not work for me. Still, I was willing to try anything that could potentially slow the progression of my SMA. After doing my own research and talking it over with my parents, I decided to give SPINRAZA a try.
“For my first injection, I took a taxi to the clinic, so I wouldn’t have to drive myself home. My Family Access Manager (FAM), who had helped me arrange things with my insurance, met me there. This was awesome, it was so nice to see a familiar face during my first procedure. The doctor numbed my back before the injection, so all I felt was a slight pressure. I stayed for an hour after the injection and laid down while the doctors ran a few tests. Then I went home and took it easy the rest of the day. Of course, everyone’s experience is different, so it’s important to talk to your doctor about what is right for you.
“I have had six injections so far and have experienced some soreness at the injection site and headaches. Since starting on SPINRAZA, I have maintained the same mobility I have had, and that is a huge victory for me.”
Biogen is compensating Ian for sharing his story. This content has been reviewed for compliance with FDA guidelines. Please keep in mind these are Ian’s experiences with SMA Type 3 and SPINRAZA, and others may have different experiences.